She is spreading awareness about how to treat people who have dementia. “Please don’t be yelling at my husband, asking how he’s doing," she urged.
Emma Heming Willis is opening up about the challenges of caring for a loved one with dementia. Her husband, Die Hard star Bruce Willis was diagnosed with aphasia which subsequently led him to step away from acting in March 2022. The actor was given a new diagnosis last month: frontotemporal dementia. His wife is looking to spread awareness regarding how to treat people who have dementia while they are in public. Emma Willis has been married to the 67-year-old since 2009 and the couple shares two daughters, Mabel Ray, 10, and Evelyn Penn, 8. He also has three daughters with his ex-wife Demi Moore—Rumer Glenn, 34, Scout LaRue, 32, and Tallulah Belle, 29, reports Insider.
The model and author posted a video on Instagram, opening up about a recent incident where the paparazzi tried to speak to her husband while he met with a group of friends for coffee in Santa Monica. “If you are someone who is looking after someone with dementia, you know how difficult and stressful it can be to get someone out into the world and to navigate them safely, even just to get a cup of coffee,” she said. “It’s clear that there’s still a lot of education that needs to be put forth. So this one is going out to the photographers and the video people that are trying to get those exclusives of my husband out and about. Just keep your space.”
During the video, Willis was obviously getting emotional as she spoke about her husband and his condition. She hoped more people would treat him with respect and grace during this difficult time. “I know this is your job, but maybe just keep your space,” she continued. “Please don’t be yelling at my husband, asking how he’s doing, whatever. The woo-hooing and the yippee-ki-yay’s — just don’t do it. Give him the space. Allow for our family or whoever’s with him that day to be able to get him from Point A to Point B safely. That’s my PSA.”
She has now taken the role of her husband's full-time caregiver and is also working with dementia care and education specialist, Teepa Snow. The 44-year-old is learning all about his dementia to give her husband-of-14-years the best life possible. In an Instagram post, Emma Willis wrote: "I’m grateful I had the opportunity to work with @teepasnows_pac who has helped me add to my dementia care toolbox. She’s a loving, compassionate, and skilled leader in this space who navigates herself with pure empathy. She’s a gift. Head to the link in my bio as her website has a wealth of caregiving information you might find useful too 💌"
Snow appreciated Emma Willis' efforts in learning how to navigate the condition and responded with kindness and support. In the comments, she said: "@emmahemingwillis has done an absolutely remarkable job of providing the right support for Bruce as his abilities have changed and created a place, space and life that continues to provide him with what he needs to live well," Snow said, adding that the disease isn't easy "but with the right programming and support, it truly is possible to continue living life." She also congratulated Emma Willis and their entire family for their remarkable hard work and dedication in caring for Bruce Willis.